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AD Workbench Terms of Use

Welcome to the AD Workbench. These terms of use cover visitors to our website and users of the digital research environment.

Welcome to the AD Workbench

Welcome to the AD Workbench, a service hosted and operated by Aridhia on behalf of the Alzheimer’s Disease Data Initiative, Inc. (“ADDI”), a nonprofit (the “AD Workbench”). If you access the AD Workbench, these terms of service and the ADDI Privacy Policy apply.

The AD Workbench allows researchers from industry, healthcare and academia to bring data, metadata, code, domain expertise, analytics and apps and deliver their program objectives more effectively by leveraging other data, tools and collaborations. The purpose of the AD Workbench is to unite data from international clinical trials and biomedical and health research to enable discoveries that benefit all people, everywhere, by reducing the harm of Alzheimer’s Disease and Dementia (the Purpose).

Workbench Data

Unless otherwise specifically stated, the AD Workbench contains anonymized data (the Workbench Data), which have been provided by third parties (the Data Contributors) for the Purpose.

Authorized users

You may only access the AD Workbench if you have been authorized to do so by ADDI. To become an authorized user, you must (a) be approved by ADDI to access the AD Workbench for the Purpose, (b) register to access the AD Workbench, and (c) accept these Terms of Use. If you are not such an authorized user you are not entitled to access the AD Workbench. Please contact ADDI to find out more about becoming an authorized user: support@alzheimersdata.org.

General terms

By accessing the AD Workbench you agree to:

  1. Not copy, download or transfer any Workbench Data (other than data uploaded by you) to an external location, other than via outputs approved ADDI.
  2. Not attempt to identify individuals from the Workbench Data.
  3. Ensure that all statistical results and outputs are fully anonymized, do not breach any individual’s privacy, and comply with any applicable data use agreements you may have executed relating to the AD Workbench.
  4. We encourage communication of the results of research in an open access publication and require attribution, acknowledgement or accreditation to ADDI, AD Workbench, and Data Contributors and participants as ADDI may determine.
  5. Comply with all applicable laws, regulations, and rules in using the AD Workbench and Workbench Data.
  6. Comply with your organization’s applicable policies and processes, including but not limited to any policies or processes relating to security, confidentiality, data protection, and ethical reviews.

Additional Terms

Some data contributors may require you to execute an additional data use agreement specific to their dataset. Upon execution, such data use agreement(s) will be incorporated here by this reference. In the event of any conflict between these Terms of Use and that data use agreement(s), the terms of the data use agreement(s) will prevail.

Data uploaded by you

If you upload data to the AD Workbench for your own use, you represent and warrant that: (a) such data does not contain personal data (as defined by any applicable law including without limitation as defined by California Consumer Privacy Act, California Privacy Rights Act, U.S. federal law, and the General Data Protection Regulation) nor any personal health information (as defined by any applicable laws including without limitation Health Insurance Portability and Accountability Act); (b) you have all rights, title, and interest in and to such data required to upload and use such data on the AD Workbench; (c) to the best of your knowledge such data does not and will not infringe, violate, or misappropriate any third-party rights; and (d) you have all full and proper consents, permissions, approvals, authorizations, and legal bases necessary to permit the disclosure, transfer (including cross-border transfer), storage, maintenance, and use of such data on the AD Workbench.

Service integrity

ADDI intends to engage a third party application service and hosting provider or providers chosen by ADDI to maintain and provide the technology and application infrastructure for the AD Workbench. As of the date of this TOS, the provider is Aridhia Informatics Limited.

By accessing the AD Workbench you agree to:

  1. The Aridhia DRE privacy policy
  2. Not attempt to bypass or override the built-in AD Workbench security controls including, but not limited to:
    • Inbound connectivity controls and restrictions
    • Outbound connectivity controls and restrictions
    • Workspace segregation and permissions
    • Virus scanning
    • Supported data ingestion methods
    • Supported data extract mechanisms including Airlock approved exports and transfers between Workspaces.
  3. Keep your allocated username and password secure, not disclose them to anyone else, and not allow anyone else to use them.
  4. Log out or lock your screen if you leave your workstation unattended for any length of time.
  5. Ensure that your use of the AD Workbench does not breach the Aridhia fair usage policy.

Updates to these Terms of Use

Aridhia and ADDI reserve the right to change these Terms of Use at any time by posting changes on-line. Your continued use of the AD Workbench after changes are posted constitutes acceptance of these Terms of Use as modified by the posted changes.

Termination

Either Aridhia or ADDI may terminate your right to access the AD Workbench or any Workbench Data at any time for any reason, including in the event of a breach by you of any of these Terms of Use. Upon the termination of your access or upon Aridhia’s request, you will promptly return or destroy any Workbench Data in your possession.

Indemnification

You shall indemnify, defend and hold harmless Aridhia, ADDI, and Data Contributors, and their respective officers, employees, agents, successors, heirs and assigns (the Indemnitees), against any liability, damage, loss or expense (including, without limitation, reasonable attorneys’ fees and expenses of litigation) incurred by or imposed upon the Indemnitees, or any one of them, in connection with any third party claims, suits, actions, demands or judgments to the extent arising out of (a) your use of the Workbench Data in breach of these Terms of Use or the activities conducted pursuant hereto, or (b) your negligence or willful misconduct. Your indemnification obligations will not apply to any liability, damage, loss, or expense to the extent that is attributable to the fraud, negligence, or willful misconduct of the Indemnitees.

Representations; Disclaimer of Warranties

ARIDHIA, ADDI, AND DATA CONTRIBUTORS MAKE NO WARRANTY, EXPRESS OR IMPLIED, INCLUDING, WITHOUT LIMITATION, ANY IMPLIED WARRANTIES OF MERCHANTABILITY OR OF FITNESS FOR A PARTICULAR PURPOSE WITH RESPECT TO ANY PATENT, TRADEMARK, NON-PUBLIC OR OTHER INFORMATION, TANGIBLE RESEARCH PROPERTY, OR ANY OTHER PROPERTY OR RIGHT LICENSED HEREUNDER AND HEREBY DISCLAIM THE SAME.

Publicity

ADDI may publicly disclose your name, project title and a list of datasets accessed by you.

You may not use the names (except as otherwise provided in these Terms of Use), logos, or trademarks of Aridhia, ADDI, or the Data Contributors in any public disclosures without the prior written consent of such other parties unless otherwise required by law or government authority or regulatory body.